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Tuesday, January 12, 2016

Here we go again!

Well we are back from another trip to Columbia. So the new plan now is for Mitch to enter back into the hospital and reopen his skull, in a different place and put the grid on in a different place and remove some more of the brain that is causing all the trouble. We just continue to pray that the Doctors can help him feel better and get rid of those darn seizures. Mitch isn't very thrilled with this news but we just continue to remind him of all the support he has and prayers that are coming his way. I still remind him that as long as they have a plan, just maybe someday he will be all fixed up and feel tons better! He will go back on January 26 to do a MRI of his brain and then we meet with the surgeon on March 21 to set up a date to do this. We are in no hurry and would love to see Mitch get done with school for the semester before we do anything. Also he is pretty pumped because he got some Royal tickets to use in April too. I am thinking it will be May or June before they do this but we will just have to see what they think! Thanks so much for the continued prayers we really do appreciate them ALL!! There are so many babies, teens and adults that need so many prayers right now and we continue to pray for all of you. Sometimes life just don't seem very fair for any of us but please everyone, remember to count your blessings, hug your babies and tell your loved ones you LOVE them all dearly as often as you can, you just never know how long any of us will be here! God Bless you all and thanks so much for hanging in there with us on this journey. LOVE YOU ALL SO VERY MUCH!!!!!!!

Monday, November 30, 2015

WOW!!!!!

Well we are back from Columbia and WOW! Dr. Lanigar will meet with the team of epileptic Drs. and they will decide our next plan of action. He wonders, only WONDERS, if Mitch should go back in the hospital and have his skull reopened and put probes, instead of the grids, in his brain and they can put them deeper and find another spot that they can take out to help him with his seizure activity. Mitch is pretty bummed and he feels like we are back at square one:( can't lie I am pretty sad-scared of this whole process too! Just hate seeing my baby so sad! Dr. Lanigar really feels like the Vagas Nerve Stimulator is an option but he is afraid with all his activity he still is having that it won't get rid of it all. He really isn't sure that if we do both of these options that it will get rid of them all but he thinks it will knock out alot of them. So it will be up to Dr. Tanaka, she has been inside his head once and she will know if any or all of this is possible. We go back to the see Dr. Lanigar on January 12th and until then we will just keep praying! We lost a very dear friend this week, that worried about Mitch, and I just know that she will have a talk with God and she will tell him "Enough, Mitch has had ENOUGH"!! Rest In Peace my dear friend, Barbara Jean, we Love and Miss you so much already and I can't wait for the day when I will see you again! Thank you all so much for the prayers and please just keep them coming for a while longer! Hope you all had a Happy Thanksgiving and are ready for Santa! Love you all so much!

Monday, October 12, 2015

Columbia Bound!

Well it's October 12th and Mitch and I have the car packed and ready to go to University of Missouri Hospital for a week stay! We are ready to tackle whatever they throw at us and we know we have Lots of support with all of you and that helps us tons. We will know when we leave the hospital if he will have the Vagus Nerve Stimulation device or not, so that is a blessing and we are so ready for Mitch to feel better. He is kinda nervous about the testing because he is afraid with the Blue October we are in, that he may have a few more seizures and his blood pressure may be alittle HIGH! He was VERY excited today with the game and he is even more excited for Wednesday's game. He has his Royal Prayer Shawl, His Royal blanket, thanks Grandma Susie and Papa Jerry, a new Royals sign, thanks to Kayse Wiederholt, and all his gear packed and ready to go. Now if the Men in Blue can just finish this without making it such an exciting game and just go ahead and score 20 runs in the first inning, we would really appreciate it:)! I will update tomorrow when we are all settled in and please if you are in Columbia area stop and chat with us!!! Well I need to get off to bed for a couple hours so I can get up and hit the highway to healing my baby. Thanks so much for all the continued prayers and for helping us get through this darn ride we are on. Please say a prayer for a dear friend of mine and her son as their momma-grandma passed away yesterday, They miss her terribly! She LOVED the Royals and I just know she was chewing their butts, like the rest of us, and helped them win the game today. RIP Grandma Dorothy, I will miss all your beautiful crocheting you did for me and all the fun visits! Love to you all, Theresa

Monday, September 21, 2015

Six month checkup!

Well Mitch had his six month checkup today with Dr. Tanaka! She is an awesome Dr. and we absolutely LOVE her. She walked in the room with a great big smile on her face and looked right at Mitch and said, "SO Mitch, how's that Donkey Brain doing?" We just all cracked up and she told us she has had alot of fun with the Donkey Brain certificate that she made him and she even uses it in her classes:)! She proceeded on to tell us that she has already talked to Dr. Lanigar and she has seen his EEG so she knows all about the activity. The plan didn't change any and Mitch will enter the hospital on October 13th and she said plan to stay a week but she is sure that his "Donkey Brain" will get us out of their sooner than that! She will come see us in the hospital and IF Mitch needs the device than she will set it up then and she will be the one doing it, which made us happy! Mitch wasn't real excited about another surgery but she told him that it was an outpatient thing and he would only be at the hospital for a couple hours so that made it alittle better, I hope!!! Thank you all for all the continued prayers, we really do appreciate them! Love you all, David, Theresa and Mitch

Tuesday, August 4, 2015

Home again!

Well we made it home again safely from another trip to Columbia! I have a saying above my bed that Dave's Aunt Aggie gave me and it says "God doesn't give me anything that I can't handle, I just wish he didn't trust me so much! I look at it every morning before morning prayers and just pray!!! So yes we are on another roller coaster, Mitch had an EEG a couple months ago and it showed just what we thought, lots of activity is still going on in his brain. We told Dr. Lanigar about all the different spells Mitch has been having and how his arm continues to go up and down and how he isn't sleeping as good as he was and the list goes on and on! Dr. Lanigar does feel like the surgery has helped some but he also feels like there is more we can do. He said that his activity comes from so far deep down that they couldn't get to it and now it is making its way back to the top. So our plan now is on October 13th he will be admitted to University of Missouri Hospital for 3-7 days and have the extended EEG again where they can tell exactly what is going on and where all the activity is located and then depending on that he will get a device, kinda like my pacemaker, called VNS Therapy (Vagus Nerve Stimulation) and this would zap activity before it gets started. The way we understand it is that it would zap every 3 minutes and it will take a year to get it set up correctly. It is placed under his skin on his chest and the wires go up to the neck! We wondered why they didn't do this in the first place but my very smart Doctor cousin thought it was because he was having so many seizures the device couldn't stop them all but now there aren't as many and this would be a wonderful device to have. So for right now we will continue taking all the medicine that he has been taking and he really doesn't want to add anything to it and then hopefully he can get this device and then they would ween him off if possible. Mitch and us, were pretty down after the appointment but hey they aren't giving up on him and they continue to have a plan to make him feel better, so it's time to buck it up and find that smile and know that God has a plan and is helping us through all of this. I am still doing good, I am very sad that one of my very best male friends from work passed away suddenly early Monday morning. He was my personal maintenance man and I admired him so much. It breaks my heart to know that his family will miss him so much but he has a Grandson that was waiting for him when he went through heavens gate and I am just so happy that they are together again! Love you so much Mr. Wilson and I can't wait to meet up with you again!!! Thanks so very much for the continued prayers, you will never know how much they mean to us. Theresa

Tuesday, July 28, 2015

Summer is coming to an end:(!!!

Well Summer is coming to an end and the school year is about ready to start and NOPE I'm not ready for that!!!! Mitch is hanging in there and getting ready to move back to his apartment! He is pretty excited to start his Senior year and I am so proud of him for sticking in there and he is going to Graduate......sometime but no hurry! We are very anxious for his upcoming appointment next week in Columbia. He still isn't feeling the best but I still think better than he was! He is VERY proud of the Royals and he said he has waited a VERY long time for them to be this good. I was going through his school pictures and he had a Royals shirt on in 5 of his 12 years, I'm pretty sure he would dress after I left for work cause I remember MAKING him change his clothes many times because that is all he wore, believe me, most of the shirts got very ratty:), now that is pretty much all he wears again!! We hope to make it to a couple more games before the season ends but I'm pretty sure they are all about sold out now, CRAZY!! So thank you Royal's for another awesome year!!!!!!!! I am doing really good! I got my pacemaker with defibrillator and have gotten along great. We took a very relaxing vacation with some family and I did absolutely nothing on it! It was wonderful sitting by a pool for five days!! I still have to take it easy for a couple more weeks but all in all I feel good! Thanks so much to my family and friends for all you have done to help me through this, I couldn't have been so relaxed without you all. I go back on August 7th and hope that all is well and I can get released to do whatever! Hope you all are well and had a great summer and ready for it to be over cause it is going to be real soon!!! Thanks so very much for the continued prayers and all the message we get, you really will never know how much it all means to us!!! Love you all and God Bless you all, Theresa

Friday, July 3, 2015

Happy Fourth of July!!!

The crops are all in and the haying is beginning, thank you mother nature for stopping the showers for a bit so we could get this done, and medically things are going about the same here. Mitch has some good days and some not so good days but that is the way life is, I told him we all have good and bad days! I did call and get him an appointment for August 4th so hopefully they will give us some reassurance that everything is still on track! I will have my pacemaker, with defibrillator, put in on July 8th, it will be here before you know it. We are going to the lake on July 19-24 and we are really looking forward to just some relaxation! Mitch hasn't decided if he wants to go or not but I sure hope he will. Hope you all are doing well and ready for summer to be over! Just can't believe that July 4th is here! Please have a safe and happy 4th and try to enjoy the rest of the summer before school starts! Thanks so much for checking in on us and hopefully I will update after my pacemaker is in place. Love you all Theresa