Total Pageviews
Monday, October 12, 2015
Columbia Bound!
Well it's October 12th and Mitch and I have the car packed and ready to go to University of Missouri Hospital for a week stay! We are ready to tackle whatever they throw at us and we know we have Lots of support with all of you and that helps us tons. We will know when we leave the hospital if he will have the Vagus Nerve Stimulation device or not, so that is a blessing and we are so ready for Mitch to feel better. He is kinda nervous about the testing because he is afraid with the Blue October we are in, that he may have a few more seizures and his blood pressure may be alittle HIGH! He was VERY excited today with the game and he is even more excited for Wednesday's game. He has his Royal Prayer Shawl, His Royal blanket, thanks Grandma Susie and Papa Jerry, a new Royals sign, thanks to Kayse Wiederholt, and all his gear packed and ready to go. Now if the Men in Blue can just finish this without making it such an exciting game and just go ahead and score 20 runs in the first inning, we would really appreciate it:)! I will update tomorrow when we are all settled in and please if you are in Columbia area stop and chat with us!!! Well I need to get off to bed for a couple hours so I can get up and hit the highway to healing my baby. Thanks so much for all the continued prayers and for helping us get through this darn ride we are on. Please say a prayer for a dear friend of mine and her son as their momma-grandma passed away yesterday, They miss her terribly! She LOVED the Royals and I just know she was chewing their butts, like the rest of us, and helped them win the game today. RIP Grandma Dorothy, I will miss all your beautiful crocheting you did for me and all the fun visits! Love to you all, Theresa
Monday, September 21, 2015
Six month checkup!
Well Mitch had his six month checkup today with Dr. Tanaka! She is an awesome Dr. and we absolutely LOVE her. She walked in the room with a great big smile on her face and looked right at Mitch and said, "SO Mitch, how's that Donkey Brain doing?" We just all cracked up and she told us she has had alot of fun with the Donkey Brain certificate that she made him and she even uses it in her classes:)! She proceeded on to tell us that she has already talked to Dr. Lanigar and she has seen his EEG so she knows all about the activity. The plan didn't change any and Mitch will enter the hospital on October 13th and she said plan to stay a week but she is sure that his "Donkey Brain" will get us out of their sooner than that! She will come see us in the hospital and IF Mitch needs the device than she will set it up then and she will be the one doing it, which made us happy! Mitch wasn't real excited about another surgery but she told him that it was an outpatient thing and he would only be at the hospital for a couple hours so that made it alittle better, I hope!!! Thank you all for all the continued prayers, we really do appreciate them! Love you all, David, Theresa and Mitch
Tuesday, August 4, 2015
Home again!
Well we made it home again safely from another trip to Columbia! I have a saying above my bed that Dave's Aunt Aggie gave me and it says "God doesn't give me anything that I can't handle, I just wish he didn't trust me so much! I look at it every morning before morning prayers and just pray!!! So yes we are on another roller coaster, Mitch had an EEG a couple months ago and it showed just what we thought, lots of activity is still going on in his brain. We told Dr. Lanigar about all the different spells Mitch has been having and how his arm continues to go up and down and how he isn't sleeping as good as he was and the list goes on and on! Dr. Lanigar does feel like the surgery has helped some but he also feels like there is more we can do. He said that his activity comes from so far deep down that they couldn't get to it and now it is making its way back to the top. So our plan now is on October 13th he will be admitted to University of Missouri Hospital for 3-7 days and have the extended EEG again where they can tell exactly what is going on and where all the activity is located and then depending on that he will get a device, kinda like my pacemaker, called VNS Therapy (Vagus Nerve Stimulation) and this would zap activity before it gets started. The way we understand it is that it would zap every 3 minutes and it will take a year to get it set up correctly. It is placed under his skin on his chest and the wires go up to the neck! We wondered why they didn't do this in the first place but my very smart Doctor cousin thought it was because he was having so many seizures the device couldn't stop them all but now there aren't as many and this would be a wonderful device to have. So for right now we will continue taking all the medicine that he has been taking and he really doesn't want to add anything to it and then hopefully he can get this device and then they would ween him off if possible. Mitch and us, were pretty down after the appointment but hey they aren't giving up on him and they continue to have a plan to make him feel better, so it's time to buck it up and find that smile and know that God has a plan and is helping us through all of this.
I am still doing good, I am very sad that one of my very best male friends from work passed away suddenly early Monday morning. He was my personal maintenance man and I admired him so much. It breaks my heart to know that his family will miss him so much but he has a Grandson that was waiting for him when he went through heavens gate and I am just so happy that they are together again! Love you so much Mr. Wilson and I can't wait to meet up with you again!!! Thanks so very much for the continued prayers, you will never know how much they mean to us. Theresa
Tuesday, July 28, 2015
Summer is coming to an end:(!!!
Well Summer is coming to an end and the school year is about ready to start and NOPE I'm not ready for that!!!! Mitch is hanging in there and getting ready to move back to his apartment! He is pretty excited to start his Senior year and I am so proud of him for sticking in there and he is going to Graduate......sometime but no hurry! We are very anxious for his upcoming appointment next week in Columbia. He still isn't feeling the best but I still think better than he was! He is VERY proud of the Royals and he said he has waited a VERY long time for them to be this good. I was going through his school pictures and he had a Royals shirt on in 5 of his 12 years, I'm pretty sure he would dress after I left for work cause I remember MAKING him change his clothes many times because that is all he wore, believe me, most of the shirts got very ratty:), now that is pretty much all he wears again!! We hope to make it to a couple more games before the season ends but I'm pretty sure they are all about sold out now, CRAZY!! So thank you Royal's for another awesome year!!!!!!!!
I am doing really good! I got my pacemaker with defibrillator and have gotten along great. We took a very relaxing vacation with some family and I did absolutely nothing on it! It was wonderful sitting by a pool for five days!! I still have to take it easy for a couple more weeks but all in all I feel good! Thanks so much to my family and friends for all you have done to help me through this, I couldn't have been so relaxed without you all. I go back on August 7th and hope that all is well and I can get released to do whatever! Hope you all are well and had a great summer and ready for it to be over cause it is going to be real soon!!! Thanks so very much for the continued prayers and all the message we get, you really will never know how much it all means to us!!! Love you all and God Bless you all, Theresa
Friday, July 3, 2015
Happy Fourth of July!!!
The crops are all in and the haying is beginning, thank you mother nature for stopping the showers for a bit so we could get this done, and medically things are going about the same here. Mitch has some good days and some not so good days but that is the way life is, I told him we all have good and bad days! I did call and get him an appointment for August 4th so hopefully they will give us some reassurance that everything is still on track! I will have my pacemaker, with defibrillator, put in on July 8th, it will be here before you know it. We are going to the lake on July 19-24 and we are really looking forward to just some relaxation! Mitch hasn't decided if he wants to go or not but I sure hope he will. Hope you all are doing well and ready for summer to be over! Just can't believe that July 4th is here! Please have a safe and happy 4th and try to enjoy the rest of the summer before school starts! Thanks so much for checking in on us and hopefully I will update after my pacemaker is in place. Love you all Theresa
Monday, June 15, 2015
Wanting a Fairy Tale Ending!!!!
Sorry it has been so long since I have posted, I have no excuses:(! Tiffany and Joel had their Fairy Tale Wedding! It was absolutely beautiful and we never imagined it would be so fun!! I broke down at rehearsal, I just hated the fact that I was giving my little girl away, Fr. Allan told me it would be ok and I even asked him again the day of the wedding if I had to and he said "Yes, it will be ok" and it is:)! I would rather think I am just sharing her with Joel tho:)! The rehearsal supper was excellent, thanks to Joel's friend PT! The wedding day had every emotion possible in it but it was just so darn fun! Tiffany was the most beautiful bride I have ever seen, ok I may be prejudice, Joel was a handsome Prince and Gia and Quincy were just ADORABLE! Not sure how many of you know but we got Gia a dress for the wedding and then a month before the wedding Tiffany had her try on my First Communion dress, that my mom made me 44 years ago, and it fit her great and Tiff said this is what she will wear, Tears of joy!! She gets to wear the dress we got her for my cousins wedding and she is pretty excited about that! Thanks to everyone that helped, The decorations were absolutely amazing, Thanks to alot of wonderful ladies for making bows, signs and decorating, the church and reception hall were just beautiful, My brother and his crew did an amazing job on the wedding dinner it was DELICIOUS, The Beer Club Men did a great job making sure everyone had a drink in their hand at all times:), thanks to EVERYONE that helped with the kids, all the runners to keep everything stocked up, the trash emptied, Thanks Aunt Trude for the YUMMY chex mix and the DJ for helping us with our special dance, sorry if you missed it but you really didn't miss much there:), to the photographer that ran her butt off all day chasing after and capturing every moment of the day, we can't wait to see the pictures, thanks to all the BEAUTIFUL Girls and HANDSOME Men that stood up with Joel and Tiff and most importantly the clean up crew, WOW thank you thank you for all you that helped us get cleaned up that night and the next morning it was APPRECIATED so very much!!! David and I couldn't have had a better 28th Anniversary if we had tried! So that my friends was our Fairy Tale but.............now we are back to real life and things aren't going as good as we had hoped! Poor Mitch just hasn't been feeling as good as he was, we still feel like he is a hundred times better than he use to be but he is noticing a few more spells, he isn't sleeping as well as he was, his arm is doing the raising thing more often and he is more tired. I try to tell him that his Doctors tell us that we really need to give it til that magic year is up and let his brain heal before we know for sure but dang it he was doing so good and we thought he was sleeping much better and now slowly we feel like he is back stepping to his old ways:(! He isn't suppose to go back til September but I may give them a call just to make sure all this is still in the normal range! We are going to the Royals game on Thursday, Mitch's birthday, and we know he will be so excited and good for that! I don't want you to think that we are giving up on him not feeling good because I feel like his spells don't last very long and he really is still more happy than he has been in a long time, he is just disappointed that he doesn't feel as good as he did. I am waiting for my Doctor to call, hopefully today, and schedule for my pacemaker! I did go last week for a test and the technician reading said she was 99.9% sure that I did in fact need it! I am still waiting to hear if the Dr. thinks I do tho! I go for my yearly scans and checkup with my oncologist on Thursday, not sure why after 12 years but I do still get scaniety! I know all will be good but I do get a few more aches and pains during this month for some dumb reason!! The evil Beast has shown its ugly face again:( Another of my Favorite Uncle's found out on Tuesday after the wedding that he had cancer he had surgery on Wednesday and is now waiting to have a couple more test and then will get a plan of action going! David's classmate lost her long battle to the beast and we have a couple great friends that are still fighting their own battle! We pray so hard every day that a miracle will happen and that someone will come up with the magic pill to Kill the Beast!!!! Thank you all for EVERYTHING you do to make our life so great, I just love all the post, prayers, running into you all and you checking on us! We are so lucky to have you all in our lives, thanks for LOVING us! God Bless you all!!!
Friday, May 1, 2015
WEDDING MONTH, YIKES!!!!!
Well May is here we have 29 days til the wedding, we can do this:)! I feel like we have a lot to do yet but I thank God for all my family and friends cause without you all, I'm pretty sure Dave and I would have been in the nut house by now:)!! It really is fun to plan and I'm just sure there are things that we are forgetting but I guess that is just the way it is going to be! Mitch is all done with finals and back here. I just LOVE having him home and can't believe how happy he is, we had family pictures taken 3 years ago and I just can't believe the difference in his look, He just looks so much happier, I know it does help that the Men in Blue are really kicking some butt so far this season and Mitch got to go to his first game this year, last night and he was thrilled, Thanks a ton Kent and Alena!! He will also go next Wednesday and Thursday, so he is in heaven! I will post more on the Wednesday game next week but we have a huge surprise for him and he has no clue, can't wait!!! Thursday is School Day at the K and he got invited tonight to that and he hasn't quit smiling yet, Thanks so much Teresa Nielson, hope he don't drive you too crazy!!!! He is so lucky to have such an amazing support group and we are so lucky to have so many people LOVE our baby! Thank you all so very much! Well my appointment today went like I figured it would:(! I will meet with a surgeon on May 22nd and he will set up for me to get a pacemaker. I will wait until after wedding to get it. Was kinda hoping to get it before the wedding but that is ok! My Dr. told me I will feel TONS better after I get it and really it is no big deal anymore! Thank you all for your prayers, I really appreciate them ALL!!! Cancer has shown it's ugly face again to a good friend of ours and one of Dave's classmates! Please say a prayer for him and her and all the people that continue to get attacked by this ugly beast, It just breaks my heart!! God Bless you all and we cherish each of you and pray that God will protect you all! Love ya Theresa
Subscribe to:
Posts (Atom)