What an emotional ride...

Hmmmm...today was seizure free as far as visible seizures are concerned (that's a good thing, right?!?).  Honestly, we are not sure that's so good.  Doctors are still looking for more seizure activity, so we pray they are getting all the activity they need.  Today, 2 of the 3 doctors indicated surgery is penciled in for Friday, this Friday, the 27th.  One doctor is still hesitant to make any promises about a surgery date and will make his final decision on Thursday.  He plans to do "mapping" on Thursday and look at all the documentation they have gathered from the brain grid.  We asked what the mapping would entail and he said it would be an interactive test with Mitch.  There is some concern that Mitch has motor function that is controlled in the same area of the brain as the areas causing the seizures.  The surgeon hopes to be able to remove the sections causing the seizures, but she voiced concern that she may only be able to "disconnect" those sections because of the risk of affecting his motor functionality.  There are no guarantees either way, but Mitch should experience more relief if the sections are removed instead of disconnected.  The doctors are also perplexed because some of Mitch's arm erections are not even registering on the brain grid as seizure activity. 

No visible seizures, but Mitch was very sleepy and lethargic today.  And let me tell you, he did not like it.  Yesterday, the doctors cut back on one (Kepra) of his four seizure meds and today they took all of the Kepra away. Mitch was begging to have his meds back so we know he was not feeling good at all.  Eventually, he was so sick to the point of nausea and vomiting.  It broke our hearts and we felt so bad for him...cannot even imagine how scary all of this is for him!  He definitely knows something is not right.

We are in the middle of hoping the second surgery could be scheduled for this Friday so this can be over soon, but praying they have the comprehensive results they need to get Mitch relief.  Another week and a half of watching Mitch go through this would be somewhat torturous for his Mom.  Hoping and praying for positive results! 

Mother Theresa is strong as always and remains positive (maybe even a little excited to think her baby may have surgery on Friday and get relief from the seizure activity he has endured for so many years).

I just have to throw in a little throw-back moment...As the nurse was checking Mitch's eyes today with the flashlight, I reminded him of the moment at Children's Mercy when his Dad and I were sitting with him and Mitch showed his first sign of responsiveness to a flashlight after nearly a week in a coma.  My heart leaped at that very moment! My heart leaped today...so very proud of my Godson!

Submitted by Mitch's Godmother